All National Prion Monitoring Cohort research assessments at UCLH are cancelled. The Open Day of the MRC Prion Unit at UCL will be postponed.
For referring doctors we are accepting referrals of patients in whom you suspect CJD. Certain specialist tests will not be available until further notice, including diagnostic and predictive genetic testing of the prion protein gene, and the Direct Detection Assay for variant CJD.
Please contact Phil Parker, Lead Nurse, on 07980 750821, or alternative Simon Mead, Clinical Lead on 07852331325. Philip.email@example.com; firstname.lastname@example.org. We will route messages to the most appropriate person. Please bear with us as the situation is changing rapidly and some of our staff may be redeployed to other areas of the NHS.
This is a very difficult time for everyone. We are aware that this will be adding to the very significant challenges that people with a diagnosis of prion disease and their families are already facing. The staff of the Prion Clinic will do whatever we can to support you through this stressful period. If you have any concerns, or need practical or emotional support, please do call your allocated nurse. We are also able to offer you a telephone counselling session with our psychology colleagues if you feel in need of specialist help.