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MRC Prion Unit
From fundamental research to prevention and cure
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Local services - Statutory organisations

The following services in your own area may contribute to your care package. All services can be accessed via your GP, and some will take referrals directly from families. It is imperative that a case conference is arranged as soon as possible so that the needs and wishes of the individual and family can be established, a key worker appointed, and appropriate practical help put in place as quickly and sensitively as possible.

Social Services
Social services appoint a Care Manager who will arrange a case conference and identify a keyworker. Specifically social services will be able to advise on financial benefits, day care, respite care and long-term care. Many services for people with progressive neurological problems have been set up with older people in mind, but there are more and more specialist services being developed around the country.

General Practitioner
Your GP should help to coordinate services and advise on ongoing medical problems. In many cases it is the GP who will have the responsibility to refer the individual to relevant services.

  • Occupational Therapist and Physiotherapist
    Occupational therapists are involved in assessing for adaptations and aids to facilitate mobility and independence in daily living. A physiotherapist is able to advise and provide exercises to maintain mobility and prevent secondary handicap arising from the condition.

  • Speech and Language Therapist
    Speech and Language Therapists offer advice about communication and swallowing.

  • Community Psychiatric Nurses (CPN)
    CPN's provide advice on behavioural problems. Behavioural problems arise for a number of reasons (for example side effects of medication, disease progression, communication difficulty, and perceptual impairment) and various health professionals can be of assistance.

  • Admiral Nurses
    Admiral nurses are available in some areas of the country. Their role is to support carers of people with a dementia.

  • District/Macmillan Nurses
    Provide help and support for daily nursing needs.

  • Continence Advisors
    Equipment and advice regarding the management of incontinence, in addition to a laundry service are also available in the community.

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